Patient stories
Gain insights and encouragement from people living with pulmonary fibrosis.
Wherever you are in your journey with pulmonary fibrosis journey, others have been here, too. Watch the videos below to learn more about their stories.
Susan and Olivia's story
Susan recalls how her family, especially her daughter Olivia, helped bring back laughter into her life after diagnosis.
Ron’s story
Ron shares how playing golf and learning to slow down have helped him live with pulmonary fibrosis.
Jean’s story
Jean explains how mindfulness helps her maintain a positive outlook.
Howard’s story
Howard shares his positive experiences of pulmonary rehabilitation, as well as his love of being by the sea.
Terry’s story
Terry tells us how his passion for both motor cars and life helps him through the bad days.
Susan’s story
Susan explains how friendships keep her connected.
Liz’s story
Liz talks about the importance of having a support network to help her manage her disease.
A word of advice
People living with scleroderma share their advice to someone newly diagnosed with the condition.
A word of thanks
People living with scleroderma share their thanks for dedicated doctors.
Abbreviations: ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; PF, pulmonary fibrosis; RA-ILD, rheumatoid arthritis-associated interstitial lung disease.