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FAQs

Frequently asked questions

Key topics for people with pulmonary fibrosis and those caring for people with the condition.

Browse the topics below and click on a question to see the answer.

I am living with pulmonary fibrosis

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Exercise can help to maintain your physical and mental health. Of course, your ability to exercise depends on a variety of factors, including how advanced the disease is, as well as your age and general health. Just trying simple, light exercises, such as a short walk, can be a good start. Talk to your doctor before embarking on any exercise regime, as they can help to evaluate your condition and determine an appropriate level of activity.1

There are ways you can help yourself when living with pulmonary fibrosis. Vaccinations are important and effective ways to protect yourself from infections.2 Practicing relaxation techniques and trying complementary therapies can also help reduce stress and improve your overall well-being. Don’t be embarrassed to ask for support from friends and family. You can also join a support group for further help with living with pulmonary fibrosis.

Yes, you can travel, but it is always wise to check with your doctor first. You will need to plan more in advance, and make arrangements to consider your condition. High altitudes can worsen breathlessness, as can the climate and terrain. You may also need to inform your insurance and travel companies in advance. Your healthcare team can advise you on how to prepare and plan for your trip.3

I have just been diagnosed with pulmonary fibrosis

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There are various treatment options for pulmonary fibrosis. Non-pharmacological treatment options include pulmonary rehabilitation, oxygen therapy, and lung transplantation. Your treatment team knows your individual situation and condition and are best able to talk to you about possible therapeutic options.4

A clinical trial is a medical study designed to investigate how effective and safe a new treatment is. All new treatments have to go through many years of development to ensure they are safe for use in humans and that they work as expected.

You may see a lot of different doctors and other healthcare professionals over the course of your diagnosis and care. Depending on your specific condition, your healthcare team can include your doctor, pulmonologists (doctors who are specialists in treating lung diseases), nurses, psychiatrists, occupational therapists, and others. For some conditions with pulmonary fibrosis, your care team may include rheumatologists (doctors who are specialists in autoimmune diseases).

I care for someone with pulmonary fibrosis

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The support of friends and loved ones is very important for someone living with pulmonary fibrosis. However, remember to take care of yourself too. You may feel frustrated or guilty at times, but the care you give makes a big difference.

To provide the most effective care for your loved one, it is vital that you are supported too. Patient associations and community support groups can support you by allowing you to discuss your feelings with other people in similar situations. Complementary therapies such as yoga and relaxation techniques can also be beneficial for you as a carer.

Don’t forget, even carers need caring. Are there any family members or friends you can turn to for support? Just a few hours off every now and again can help you relax and maintain social relationships. Your doctor may also be able to help with sorting out some assistance for you. Making sure you take time to care for your own health is an important part of caring for someone.

How is pulmonary fibrosis diagnosed?

Diagnosing pulmonary fibrosis can be hard and take a long time. Doctors will look at your medical history and a team of specialists may perform a range of tests. These may include lung function tests, X-rays, and blood tests that help rule out other conditions to make a confident diagnosis.4

Abbreviations: ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; PF, pulmonary fibrosis; RA-ILD, rheumatoid arthritis-associated interstitial lung disease.

  1. Vainshelboim B. Exercise training in idiopathic pulmonary fibrosis: is it of benefit? Breathe (Sheff). 2016;12(2):130-138.

  2. Cottin V, Crestani B, Valeyre D, et al. Diagnosis and management of idiopathic pulmonary fibrosis: French practical guidelines. Eur Respir Rev. 2014;23(132):193-214.

  3. Luks AM. Do lung disease patients need supplemental oxygen at high altitude? High Alt Med Biol. 2009;10(4):321-327.

  4. Wells AU, Hirani N. Interstitial lung disease guideline. Thorax. 2008;63(Suppl V):v1–v58.