Resources
Browse below for more information and support.
Video library
Pulmonary fibrosis across conditions
Learn how pulmonary fibrosis behaves in different conditions.
Pulmonary fibrosis basics
Rheumatoid arthritis-related interstitial lung disease (RA-ILD)
Scleroderma and pulmonary fibrosis
Hypersensitivity pneumonitis and pulmonary fibrosis
Sarcoidosis and pulmonary fibrosis
Scleroderma life hacks
Living with scleroderma has its challenges, but these smart strategies can help.
Cold hacks
Dry skin
Raynaud’s syndrome
Cold feet
Uncomfortable breathing cold air
Kitchen hacks
Chopping food
Handling frozen food
Looking for meals that work for you
Trouble gripping cutlery
Childcare hacks
Cleaning up around the house
Changing your baby’s diaper
Packing your diaper bag
Getting ready for school
Holiday hacks
Gift wrapping
Minimise cleanup
Preparing for a family gathering
Speed up table setting
Trouble lifting heavy dishes
Mental hacks
Dealing with negative emotions
Find it hard to open up
Feeling low and unmotivated
Patient stories
Susan and Olivia's story
Susan recalls how her family, especially her daughter Olivia, helped bring back laughter into her life after diagnosis.
Ron’s story
Ron shares how playing golf and learning to slow down have helped him live with pulmonary fibrosis.
Jean's story
Jean explains how mindfulness helps her maintain a positive outlook.
Howard's story
Howard shares his positive experiences of pulmonary rehabilitation, as well as his love of being by the sea.
Terry's story
Terry tells us how his passion for both motor cars and life helps him through the bad days.
Susan’s story
Susan explains how friendships keep her connected.
Liz’s story
Liz talks about the importance of having a support network to help her manage her disease.
A word of advice
People living with scleroderma share their advice to someone newly diagnosed with the condition.
A words of thanks
People living with scleroderma share their thanks for dedicated doctors.
Abbreviations: ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; PF, pulmonary fibrosis; RA-ILD, rheumatoid arthritis-associated interstitial lung disease.